ALLOUEZ, Wis. (WFRV) – “You never know when someone is walking up to you, what they’re going to say, or how they’re going to say it,” said Carol Shroyer. Carol and her husband James have a daughter, Jenny Shroyer, who lives with neurofibromatosis. Commonly referred to as NF, it causes tumors of various sizes and shapes on nerve endings. When the family saw the story of Mackay Campbell, who is 14 years old and has lymphatic malformations, they reached out to Local 5 News to tell their story.
“I liked Mackay’s story. It really showed that people are different and that we are made different,” said Jenny Shroyer. Jenny, who is 28 years old, has had NF since she was born. The condition has a 50/50 chance of being passed on from one parent. Jenny’s father James also has NF. “I feel guilty but she’s still my daughter and I love her,” said James. According to James, he is the only one in his family who has this rare disease. “I have it on my face and hands, I had some surgically removed, but they can grow back,” said James.
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